Dr Horowitz does a wonderful job on Today this morning in the short time allotted! http://m.today.com/klgandhoda/chronic-lyme-disease-what-you-need-know-1D79878631
A beautifully written poem about pain and reacting to it positively. Absolutely love this!
Originally posted on Arklatex Lyme and Tick Borne Disease Prevention & Support:
For those of you who don’t understand the complexity of the Lyme Disease controversy, Kathleen Dickson spells it out for all! Very important to understand this:
“Lyme Disease” is far more than just permanent spirochetes (as proven repeatedly by IDSA themselves). The reason for the “controversy” however is 2-fold: 1) the Lyme criminals of Yale, the ALDF.com, and finally, IDSA, wanted to narrow the disease blood test definition to only the arthritis cases (arthritis does not need intravenous medication), because their patented products like the OspA vaccines would be worthless if everyone knew Lyme was a disease of immunosuppression, like AIDS. And 2), the falsified LYMErix (OspA) vaccine was removed from the market because it caused the same general illness/diseases as Chronic Lyme, not because it was whole, live spirochetes, but because it was a fungal antigen that activates latent Epstein-Barr and similar herpesviruses. CDC staff were involved in the…
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As Lyme disease affects our moods, causes irritability, and incites rage, I suppose it comes as no surprise that there is discord in the Lyme community.
It’s heartbreaking to watch one situation after another unfold in which Lyme warriors who have been accomplishing so much good battle against each other. Frankly, this threatens the end goal of making our ONE LOUD VOICE HEARD! Sadly, what is being announced instead is how kind-hearted albeit ill people can defame each other and how many will join forces with each side. Silly.
Please stop the nonsense and do your wonderful positive work together for the benefit of the community as a whole!
Much love and healing to you all!
Dear Neuroborreliosis aka Lyme disease,
Due to your presence in my life, so many things have been lost: My ability to drive, my ability to walk, my hobbies, my job, my freedom, my home, etc. The thing is that you’ve likely heard this from so many unfortunate souls who have had the displeasure of your company. What you may not have heard is how being forced to slow my supersonic life has changed me for the better. I was moving at such a fast pace every day that I didn’t have time to care for myself. This is likely how you moved into my brain so drastically. I was living beyond my means and working beyond my capacity to pay for everything. Life is simpler now. I have seen the best in some of my loved ones. I’ve seen how much they truly love me, and I love them even more for it.
No, I will not be thanking you as I long for some semblance of an active life again, but I will say that I do see the silver lining on the Lyme green cloud.
Several days that found me laying in bed unsure if I could walk on my own power have led me to preparedness measures.
I’m now keeping my phone with me in the event I need to call for help although I’m not sure how my parents will react to such a call. My father is a tough guy, and I tend not to allow him to see much of my struggles. My mom, I believe, is fed up with my illness. I’ve always been the caretaker, and I think she is missing that me. I long to be that person again. Perhaps someday.
So, in an effort to avoid making that call, I now have my wheelchair tucked away beside the bed. It’s reassuring to know it’s there just in case.
Maybe this will pass without progressing to the point that I can no longer maneuver through the house on foot, but should it come to that, I’m prepared.
Health – It’s been so long since my last post. My sensitivities are crazy awful. It has been one month since I stopped antibiotics. I can’t possibly tell you all of the back stepping. I will not give in, however, and push to maintain my albeit limited activities everyday.
Love – Once more I have to say that I am extremely lucky to have a husband who is willing to be whatever I need. He has adjusted his life in so many ways to accommodate my illness. I loved him before and love him so much more today.
Internalize – After an extended period of verbally keeping my symptoms quiet with certain loved ones, a couple of short discussions in the last two days remind me to keep it to myself.
I despise symptom competing. There are others in my life who suffer from illness. I feel for them and wish them relief. I do not wish any of this on them, and when my symptoms suddenly become theirs, it troubles me for multiple reasons.
Are they coming down with these problems so much like mine because they are misdiagnosed? I pray it isn’t so but fear it is. Lyme disease is often misdiagnosed as MS, ALS, fibromyalgia, and many other chronic and deadly illnesses.
Is it a coincidence that they suffer from these things after I talk about them? The last thing I want to do is presume that someone I love is playing it up or suffering from a psychosomatic illness. Perhaps that they feel as I do shortly after I talk about it is simply a coincidence time and again.
These couple of recent talks confirm what I had decided last year, there are people in my life that I at one time could turn to with anything, but I no longer am able to confide in with a clear conscience. For their sanity a well as my own, I will return to silence.
I would love to hear if anyone else has had a similar experience.